Welcome to my first ever blog.  Here I will be writing about my trials and tribulations in dealing with malignant paraganglioma (extra-adrenal pheochromocytoma) with an SDHB mutation.  I wanted to get in all the right words for people googling this condition.  Check back soon for more of my brilliant (ha) thoughts.  Actually, it will be more like train-of-thought babbling.  Thanks for visiting.