God is love.
Living With Malignant Paraganglioma Pheochromocytoma SDHB Mutation and the Search for Treatment
Monday, May 4, 2009
My husband has been taking a flashlight and checking my throat, and he thinks there's another defect, or a small hole, back there. If that's true, I may have to have a skin graft to cover it. They would take skin from the inside of my wrist, along with a tendon and blood vessels and put into the back of my throat. They say that's an all day surgery and 2 weeks in the hospital to recover. The doctors have told me that is a last resort, and it's not something to look forward to. So we're praying that there's just a dent back there. I go to see the surgeon tomorrow so he can have a look. There's a lot of saliva and bubbles back there, so it's really hard to tell what is what. Plus it looks disgusting from the surgery. The doctor has a little suction tool he can use to clear things up, so I hope he'll be able to see something. Or better yet, see nothing. It's all very frustrating. And I'm having trouble with my speech. Since it's all swollen back there, it's hard to get some of the sounds out sometimes. A few weeks ago, I was having a hard time saying prayers for myself, and now I'm having a hard time remembering to pray for other people. And Cody's birthday party is May 16, and I would really like to be there for that. To be able to eat and drink then would be a plus, but I would be really happy if I could just be there to see him playing with his friends. I'll post again tomorrow after my doctor visit. Think positive thoughts for me.
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