April Fool's Day

I was never big on playing tricks on people, so today isn't that big of a deal for me.  When I worked, it was more fun because there are all kinds of things you can do to a person's desk or cubicle.  Now it's the 8 year old, so I have to be careful not to do anything that's too mean or time consuming because it will be wasted, or the 19 year old, whose sense of humor differs a little from mine, so any tricks on her will probably just elicit an eye roll.  And I'm lazy.  A good trick can time time and effort, and I just don't have it in me.  I guess I could tie the water handle open on the kitchen sink.  That would be funny.  But then I would have to clean it up.  And then it's not so funny.  Oh well.  My sister used to try and trick me all day.  I wonder what she's torturing her kids with today.

I had chemo last week.  Kassy came with me on Thursday.  She wanted to see what all the fuss was about. After the initial shock of the "thumb tack" needle into the port, it was pretty uneventful.  We both dozed off half the time.  The next day Nikki came and we played games, and after she left, I got another wonderful burning reaction from the chemo, which is extremely painful while in the sun.  No one can figure that one out.  My blood pressure has been pretty good, and my heart rate is better.  Before this last chemo, my heart rate was getting high, which can be a problem.  If it doesn't stay down, I guess I'll have to try some medication to keep it down.  Having your heart beat at 130 beats per minute when you're trying to sleep is a little odd.  Phenoxybenzamine is the pick.  It's expensive and always needs to be ordered, and it makes me sleepy and my nose stuffy.  Men have more side effects.  Very odd side effects.  You'll have to google it if you want to know.

I get a PET scan in a few weeks, and if everything looks good, I can take a break from the chemo.  That would be good, I would like to take a break, but the last time I took a break from my chemo schedule, the chemo stopped working, and I don't want that either.  I'll have to talk to the doctor more about it first, but I'll let you know.

There have been a few more "pheo" people doing blogs now too.  It's interesting to read how different everyone's experience is with this so rare disease.  But it's hard too when some of these people don't have experienced doctors following them or giving them advice, and the less experienced doctors act like they know what they are doing.  I wish I could express to them how important experience is, but everyone has their way of doing things and I can respect that.   But it's also hard to hear when someone is getting all the treatment they can and nothing is working for them.  I thank God every day and night that my treatments are working for me, and ask that He include other people who need it so their treatments can work, but we all know everything happens for a reason.

Ken's parents are in Yosemite now, and woke up to a blanket of snow.  I've spent a lot of time in Yosemite, but have never seen it all white.  I hope they take a lot of pictures so I can see it.

That's all for now.  Thanks for reading.  God is love.