God is love.
Monday, April 27, 2009
Hospital tomorrow
I have to be in the hospital tomorrow at 10:00 a.m. My oncologist called me today to tell me that the tumor chemical levels have gone up since February, which is not really a surprise since I stopped taking the chemo drug Sutent when all this throat stuff started happening. My mom got here today to help with Cody. At least I can pack my own bag this time instead of it being an emergency like the last 2 times this month. I'm a little anxious about it, buy my surgeon is very confident, so that makes me feel a lot better. I hope I get to be in the same part of the hospital I was the last few times, because the rooms are private and they all have reclining loveseats in them. I'm spoiled now, I don't want to have to share a room with someone. Plus all the nurses know me up there. I probably won't write again until after the surgery. Please say prayers for me on Thursday at 1:30. Thanks.
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American friend found your blog mavilhoso. I love your country. I do not want to make the Brazilian President to the IMF money. And our people need a good medical care, public safety and so on. Hug a friend of the Manoel Limoeiro Brazil.
ReplyDeleteFriend love you like you were my follower on my blog. Do it please ok baby. A hug from: Manoel do Brazil.
Hi Pam, thanks for the post on Dr Pheo's blog, I also think we have communicated on other sites.
ReplyDeleteI have been reading your blog, not sleeping much at the moment...You are an incredibly resilient and resourceful person, I am sure I would have given up by now and just taken the morphine option. Trials for Sutent are starting in the UK in the near future but will take time to set up. In the meantime we are going to request my husband (Ian) tries temozolomide, as suggested by Dr Ashley Grossman. Ian is terrified chemo will kill him as we have watched friends try various chemo treatments for various cancers only to suffer and die anyway. It's a difficult time and obviously it has to be his decision. Until very recently he has not wanted to know anything about pheos so I have been quietly researching and feel very fortunate to have found people like you all over the world. I now have a list of questions to ask the oncology team on 11th May and Ian has agreed to discuss the options with me and them.
I am very glad you are home & hope you are recovering well. Kind Regards.. Jane
(ps. I like the Mother Teresa quote, my son visited her house when he was in Kolkata recently)