God is love.
Living With Malignant Paraganglioma Pheochromocytoma SDHB Mutation and the Search for Treatment
Friday, May 1, 2009
Home again
I am home again. We didn't get discharged until 8:00 p.m., which was a little frustrating, but I did get home in time to hug Cody before bedtime. He ran outside as soon as he heard the garage door. It was so cute. Kassy had airport problems tonite, so she'll be home in the morning. I have follow up appointments in two weeks, so hopefully by then I'll be able to get rid of the tubes and start living life a little more normal. Now, for me, it's time to sleep in my own bed. Ahhhhhhh... yes....
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Hi Pam. Hope you are feeling OK. we have just heard that the UK won't fund sutent so I am mobilising all our friends and family to lobby MPs/ Govt. etc. and will chain myself naked to the railings at the houses of parliament to get this decision reversed if I have to.
ReplyDeleteIan is resigned to his fate, I am not prepared to give up without a fight. Kind regards Jane
Great that your at Home. I'm back in the Hospital in Thousand Oaks after an episode of runaway pain on sat. still trying to diagnose the cause. Being home is soo much better enjoy your family and get better everyday.
ReplyDeleteBryan